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Replies to "@speechless623 You have recently been diagnosed with Ataxia but you question why the symptoms are only..."
Brain & Nervous System | Last Active: Feb 28 3:42pm | Replies (67)
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@speechless623 You have recently been diagnosed with Ataxia but you question why the symptoms are only on your right side.
You will see that I have moved your question into a discussion where members have previously discussed Ataxia so you could more quickly connect and get support. Members like @IndianaScott @rmftucker @rivergirl8243 @jakedduck1 @Erinmfs have experience with this topic and may be a good resource for you. I also encourage you to scroll back through the comments to find previously shared suggestions.
May I ask what the process was like regarding receiving a diagnosis? What was the provider reasoning behind why only one side of your body experiences symptoms?
Replies to "@speechless623 You have recently been diagnosed with Ataxia but you question why the symptoms are only..."
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Thank you for your response. I have been sick for 3 years - looking for correct diagnosis. Mayo neurologist said my condition was a result of severe stress; I then saw Neurologist at USF who said I have Spinal-Cerebellar Ataxia and there is no cure. I am presently seeing 2 Neurologists in Gainesville who want me to do a Fluoroscopic Guided Lumbar Puncture (they did a "regular" Lumbar Puncture on me last month, but were unsuccessful in getting any spinal fluid). They need spinal fluid to run tests to determine cause of Ataxia. I've had Genetic Testing done that came back negative; I have had two (2) EMGs - both negative. GAD65 was positive (however, I have a family history of Diabetes, but I have never been diagnosed with Diabetes (If I had been diagnosed with Diabetes, that could explain positive GAD65 blood test result). I have not gotten an answer from doctors as to why do I only have Ataxia symptoms in the right side of my body? I think it is important I am correctly diagnosed. After I do the Fluoroscopic Guided Lumbar Puncture, my doctor wants me to do IVIG Therapy. Does anyone have information or first hand experience with IVIG Therapy please?