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wholly cow @jakedduck1 , I'm glad you are still with us to talk about these things! you have been through alot.
I had many brain tests at the NIH when I was there. I had a magnetoencephalography, that's measuring the electircal currents off your brain by sticking your head in this huge can contraption. and I had a fMRI, I was in the scanner 90 minutes straight , I had such a headache afterwards. At Mayo the neurologist ordered some kind of test, like a shower cap with electrodes in it, measured some kind of brain impulses. The shower cap at Mayo is the same kinda cap worn at the hair salon when getting a 'frost'. I laughed about that too, I think a frost at the salon is probably cheaper - lol.
Each time I had a test, they found some kind of output from my brain, and i'm grateful. I'd laugh and ask if they found something - lol I still have some brain material left in there after all.
The NIH was very thorough and measured my acqueduct of sylvius to be .03 mm (I think something like that). I had my DNA tested for that human genome project a few years back. I must have the DNA for an acqueduct of sylvius that size? I hope the Federal Government can use that information to improve the health of earth's population 🙂
The doctors at the NIH said my brain has suffered alot of stress. Boy, I'll say that's the truth. I've never been diagnosed with ataxia, that sounds awful, and I'm sorry to hear about your ailments with that.
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I have ataxia from a Malaria drug called Lariam that I had to take before, during and after going to Africa in 1997. It is awful. I was always off balance and could not focus on anything. My boss changed all my lighting because florescent lighting would make it so much worse. I went to many doctors and they kept saying I had menaires. But nothing worked. Mayo clinic in Phoenix put me on clonazepam 1mg 3xday. It actually stopped it and eventually between the clonazepam and my brain rerouting with the clonazepam I did really well for 25 years. Then suddenly the doctors here decided that I should not take clonazepam because it is bad they said. But it worked. They took me off half of it and I was in Kansas visiting my granddaughter and great grandson and I apparently had fallen. I have no memory of any of it, I just woke up still hooked up to my feeding tube and pump when my granddaughter came in and started freaking out. She wanted to know how I got a black eye and bruises around my neck. I thought she was kidding until my great grandson came in an started crying and kept saying grandma hurt. I tried to sit up and when I put pressure on my left arm pain was awful. I ended up in icu with a crushed elbow and broken arm in 2 places and a concussion. Still to this day don't have any knowledge of what happened to me. They put Mr back on clonazepam and in time I felt normal again. Now new doctor wants me off of clonazepam again and it terrifies me.