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Ataxia

Brain & Nervous System | Last Active: Feb 28 3:42pm | Replies (67)

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@jmjlove

@jakeduck1
.....I too have ataxia but it is after a large cerebellar stroke. It's like my left side has a mind of its own. My strength is good, but control poor. I assume your ataxia was not brought on by a stroke. I have freak sympathy. My left hand doesn't know what my right hand is doing. I know how frustrating that can be. Much sympathy. Do you find your body acting up when you begin a particular task, but while still, no one would even know? When I try to hold a drink, my hand goes all stupid, spilling drink all over. But....unless something is in my hand, the hand stays relatively still. Though I do find the arm, shoulder blade and leg likes to do major ongoing twitching. Do you have that? Ataxia is not typical after a stroke, but I can see how a clot may bring it on. Was that your case? Sounds like it hit you out of the blue. Sorry to hear that. Do they have you in therapy, and if so, is it helping? God bless you!

Oh, and what is your prognosis? Thank you jakeduck!

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Replies to "@jakeduck1 .....I too have ataxia but it is after a large cerebellar stroke. It's like my..."

@jakeduck1.......freak sympathy...lol. great sympathy, sorry.

@jmjlove
Hi Jim,
Sorry hear all that you have been through. Did you have a hemorrhagic or an Ischemic stroke. Sounds as though your Ataxia is progressive. Mine wasn’t. It was a one time thing which happened about 20 or so years ago. Although it appeared quickly I believe that I had a subacute Ataxia which actually is caused over time but manifests itself as an acute episode. I think it was caused by seizure damage because not long before that I was in an induced coma due to Status Epilepticus. I also wonder since I have a shadow on my MRI which some say is an old mild stroke, if that could be the cause. My doctor at the time had a brain smaller than a nats.
After I got out of the hospital I never had problems again.
Are your symptoms getting better, worse or the same?
Wishing you the best,
Jake