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Acute Kidney and Liver Failure: Looking for help/direction
Kidney & Bladder | Last Active: Sep 25, 2019 | Replies (25)Comment receiving replies
@rosemarya , we have had amazing things happening. His nephrologist confirmed this morning that he will be coming off dialysis permanently, the catheter in his neck will be removed today, and with hope, he will be released from the hospital this weekend for his birthday. Over the past 2 weeks, his creatatine level dropped from 8 down to 1.9 as of yesterday morning (a 10% improvement over 24 hours alone). The hospital staff is in disbelief as they were sure he was within days of passing away. His liver function is in improvement as well, and we will be looking at options for future treatment in that area soon. We have a long road ahead still, and we are taking things slowly in order to continue with a stable recovery.
We are starting planning for my cross-country move and future plans, but again taking things slowly as to not cause undue stress on either of us. We have had a roller coaster 5 weeks with the lowest lows and highest highs, and we have learned so much.
Replies to "@rosemarya , we have had amazing things happening. His nephrologist confirmed this morning that he will..."
@pandaqty Your husband’s recovery is remarkable. You both must be ecstatic about it, what a huge relief. As @gingerw said, his story would probably be helpful for many in similar predicaments. Would he still need a kidney transplant? I suspect that now, with the improvements he has made that he would qualify.
If he is at a point where he does qualify for a transplant, another hospital to consider is Mass General. My liver transplant surgeon, Dr. Nahel Elias, is actually the head of the kidney transplant department and in my opinion you could not do better. It can be good to be listed at more than one transplant center. If a liver had not come through for me when it did, I would have listed at Mayo. They had already told me that I would in all probability be listed there and they thought they could transplant me at a lower MELD score than was expected in MA - the hospitals in Boston are so renowned that like at Mayo, people come from all over the world to go to them so the demand is great. For me the choice was easy. MGH is 55 miles down the highway.
JK
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@pandaqty That is wonderful news to hear! Have the doctors been able to pinpoint what all happened and how he was able to turn around his health so quickly? It would be very educational for a lot of people to hear his story, I bet. I'm getting ready to move also, but it's not cross-country only 750 miles. But it is still very daunting. You're correct that stress can be a major factor in your health so you are right to be careful about all of that. Please check back with us and let us know how you are doing.
Ginger