@rosemarya Thank you so much... I so appreciate your words of kindness and encouragement. I will be calling Mayo Clinic today and see about how to get him a 2nd opinion or direction from them.
From the week of 24 June till now, he has gone from nearly incoherent, to entirely cognitive, sharpening memory where he is even correcting me on certain things, able to use the restroom on his own, "hangry" as he calls his appetite, as well as gaining weight and muscle tone back from his significant weight loss (visible in his face). He is getting himself out of bed every morning and making warm lemon water to start the day. He has no swelling in his feet or legs. Yesterday evening was rough as he had dialysis, and was feeling nauseous for the first time in over a week. He has been off of pain medication as well, and his ammonia levels are way down. We have been doing an entirely plant based diet, which has brought his energy levels up, as well as his appetite and urine and bowel production up as well. I'm keeping him off sodium, and with his doctors permission, we started a supplement regimen of Milk Thistle, Dandelion root, burdock root, tumeric/black pepper, and a couple others which are known to help improve function. Prior to my leaving, his doctor was impressed (so much so, he teared up) with the improvement he had made thus far, and made note of all the things he was taking to include them in his chart and care.
I have my mom with me who is a certified holistic nutrition coach, who is helping me and supporting me as well in this time of separation. His parents are with him as well.
Because this is all such new territory to me, I'm unfamiliar with what improvement may be vs what is expected. For example, I love thinking that his increased energy and fight is a sign of improvement vs being bed ridden and incoherent.