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Acute Kidney and Liver Failure: Looking for help/direction
Kidney & Bladder | Last Active: Sep 25, 2019 | Replies (25)Comment receiving replies
I probably misspoke as far as underlying issues as my brain is fairly muddled at the moment trying to wrap my head around everything in the last month.
He had some liver and kidney issues prior to getting pancreatitis, but they were functioning. A treatment they gave him overloaded his system and caused the liver and kidneys to fail.
We got engaged at the end of April, and weren't planning on marriage for a bit longer, but the time line got pushed fast forward. I do live 1600 miles from him currently (New Mexico to North Carolina) but am trying everything I can to get my loose ends tied up so I can be with him... it was all so entirely unexpected, I basically dropped everything to be with him for as long as I possibly could, which of course isnt nearly enough for either of us right now... and I'm really scared when I'm not able to make a trip out and be with him 24/7.
I appreciate all the feedback I can get as this is unfamiliar territory to both of us.
How would I go about speaking to the nephrology department at one of the Mayo Clinics locations to see about getting a 2nd opinion and the possibility of transplant. He has family members willing to be living donors, as am I but my blood type is not a match.
Replies to "I probably misspoke as far as underlying issues as my brain is fairly muddled at the..."
I am also new to this forum. Your situation is daunting. I know I've been dealing with similar issues for over five years (diagnosed with AKF in 2/14). I think you've come to the right place. Mayo is the #1 rated hospital in the nation when it comes to nephrology and overall one of the top centers in the country. Let me also suggest that if you are on Facebook that you search for a private group "Kidney Transplants." You will learn from other's experience. It is very important that you get a second opinion as soon as you can. There is a Mayo in Pheonix you might see. Again, these problems can be solved. You just need to find the right person to help and remember to always advocate for yourself. Learn all that you can about your husband's medical condition and do not always accept your docs opinion and suggestion at face value. You must be a part of the solution. Good luck!
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@pandaqty, Here is a reliable resource for 2nd opinions that I want to give to you. If you click the link it will take you to one of the Newsfeeds in the Mayo Connect Transplant Pages which is presented by the Transplant Staff at Mayo.
Three Reasons Why Getting a Second Opinion Is Worth It - You will find link to Mayo Transplant Dept, and Contact Information
https://connect.mayoclinic.org/page/transplant/?pg=12
The Transplant Pages contain a wealth of helpful information that I also recommend for you and loved ones: Newsfeed, Living Donor and recipient Toolkits, and Resources.
Let me know how he is doing. And how you are doing.
Hugs