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Driving making neuropathy of the feet worse

Neuropathy | Last Active: Sep 30 5:14am | Replies (57)

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@jimhd

@rwinney @jeffrapp

Driving is no longer the pleasure that it always has been. I also have small fiber idiopathic peripheral neuropathy, with burning pain in my feet. I hit cruise every chance I get, even just to go a few blocks. On extended trips, I've had a pillow or a piece of egg crate in front of the seat to rest my feet on. Even so, I always have to change position of my feet. After setting them in one position for more than a minute or two, they start hurting more.

I remember driving home from college - from Missouri to California - in my '64 Valiant, I found that propping my umbrella between the steering wheel and the accelerator made the car go 60 mph on the level. My custom cruise control. I would stretch out my legs on the seat to be comfortable.

Cars have changed a lot since the 70's. Even my big F250 diesel pickup has cruise. And the semi's our son drives has it. I had one of those water circulating air conditioners that mounted on the passenger side window. Too cool!

A few years ago we went on a five week road trip to visit our daughter, then in New Hampshire, and our son in Indianapolis. It took some careful planning so I wouldn't run out of the two controlled substance meds that I take. It's a nightmare trying to fill a prescription out of state, and every state is different. It was great to see our kids and grandkids, but it was a high price to pay in terms of neuropathy pain.

Driving any distance, I have to stop at most of the rest areas to give my feet a break, and put lidocaine cream on them. That's a short term solution, but it does help. I tried Capzasin but all it did was burn, adding insult to injury.

Another thing that helps is to drive my '94 Cadillac instead of whatever small car we have at the moment. There's more room to move my feet, searching for a comfortable position. My wife doesn't like the Cadillac, so I don't get to drive it as much as I would like. But we do what we can to make the best of it.

Jim

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Replies to "@rwinney @jeffrapp Driving is no longer the pleasure that it always has been. I also have..."

Hi Jim
Your driving experience is almost exactly like mine.
About 6 months ago we bought a new car that has a form of cruise control that maintains a set distance from the car in front of you. It works amazingly well, especially on freeways, and allows me to keep my feet off the peddles more.
Since shoes and socks cause burning, I have even been known to drive barefoot (don't tell anyone), and control the peddles with my toes, in order to minimize the amount of contact with the peddles.
I have tried lidocaine cream, but I don't find that it helps much. I think it doesn't penetrate skin very well.
I am in the process of experimenting with different combinations using DMSO, which does penetrate. I'm hoping the DMSO will carry the lidocaine (or other substances like ketamine, phenytoin, etc.) with it.
I'll post results when I have them.
Meanwhile, good luck!
I wonder if anyone else has tried Ugg boots, which have a shearling lining. They seem to help some. I have even constructed shearling insoles for my various shoes, including flip flops. Lastly, I find that Crocs help some, probably because they are so roomy.