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Rits. Hi there. Glad to hear from you and that’s wonderful news that you have no more Mac growth. I am 5 days in using the Arikayce and so far so good. I am hardly coughing at all and not coughing up anything to speak of. I am told to use the Arikayce every day. It is difficult to work and do all that prep and get ready and cook breakfast and lunch before I go to work. I am having a bit of trouble sleeping and have a slightly elevated heart rate. I am wondering if it’s from the medication. It doesn’t mention those side effects at all as being something to look out for. I see my doc on October 21st. And then again in December when we will do a sputum test. I had a baseline hearing and liver function test before I began the Arikayce and will have follow ups every month that I am on it. Let me know how you are progressing. Sending many blessings your way. Best, Candy
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Candy, it was the 5th treatment that set off my really bad shortness of breath and someone else posted that it was during the first week that she lost her voice. I think if you make it through the first week you should be fine throughout the treatment. Frankly, I'm jealous that you can do the treatment in the morning and go on about your day. I cough so much that I do the treatment around 5:30 p.m. so I will stop before bedtime. Rita