← Return to Starting Arikayce - nervous

rits (@rits)

Starting Arikayce - nervous

MAC & Bronchiectasis | Last Active: Jan 22, 2020 | Replies (85)

Comment receiving replies

@bibes…I read your response and wondered how you had stolen my thoughts and words. My exact sentiments!! What might be of interest to you that I recently learned….is there can be a natural conversion of MAC. And, I believe I read somewhere, upwards of possibly 40% of MAC patients just have it "go away". Someone, please correct me if I have that wrong. That gives great hope…in the meantime while hoping for this, keep your lungs clean. There are some natural proactive practices that you might look into. Are you nebulizing a 7% solution of saline? It helps you cough up the junk in your lung. Talk to your Dr about it. Also, there is an herbal remedy that many on this site take called Clear Lungs by Ridgecrest Herbals. It is the extra strength formula in the Blue bottle. It is a compound of Chinese Herbs for keeping the airways clear. I take one a day. I also take NAC which is great for the lungs. Here is a link for info on NAC for the lungs. https://universityhealthnews.com/daily/nutrition/nac-benefits-helps-lung-problems-addictions-autism-bipolar-and-more/

I am hoping with this preventative care that my MAC will stay stable or even convert. The last and maybe most important thing that I have learned from my Dr at Mayo….If you have acid reflux and it may be silent, fluids could be aspirated into the lungs. Sleep on a wedge and do not drink or eat 3 hours before bed. We are both fortunate that we are pretty much asymptomatic. I am tired, tired, tired also and sometimes have excess phlegm and what appears to be sputum with infection…little balls of colored phlegm…and sometimes Short of Breath. That is it so far. Anyway…Just wanted to put in my two cents to someone with the same mindset as me. I really do not think I would ever entertain the big 3 under any circumstances. I say that not having some of the difficult issues that many on this site experience. I wish for us all to regain our health and feel better…I hope the same for you, Bibes…Good luck…and sorry if I am too verbose, I can't help it. haha. Best, Kate

Jump to this post

Replies to "@Bibes...I read your response and wondered how you had stolen my thoughts and words. My exact..."

Thank you so much alley cat Kate. By the way I love your name. I have a cat name Apple. And a dog named Raffles. What would we do without them? Thank you for all your information I’m going to try it all. And I’m going to talk to my doctor about them. I really appreciate it thank you

@alleycatkate Thanks for sharing the information. I wasn't aware of the MAC natural conversion. But my case may just fit the bill. When I was initially diagnosed with MAC and bronchiectasis, I had just coughed up huge amounts of blood out of the blue. I had been very healthy up till then and there was no indication that this would happen to me, except that I was chronically coughing up sticky mucus. The latter was determined to be the result of bronchiectasis, which is incurable but not life-threatening. After I came out of ER, I stopped coughing up blood and have not done so for almost 5 years. My health has been good. I eat well and am active physically. For that reason, I didn't see any reason to go on a drug treatment out of the same concern as others that they might do more harm than good to my body. My pulmonologist agreed with me. I have been very happy with my decision because I continue to be healthy and active with no indication of MAC worsening. I figure as long as I'm able to live a normal life, I can do without the drugs.