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Starting Arikayce - nervous

MAC & Bronchiectasis | Last Active: May 7 9:56am | Replies (97)
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@ethanmcconkey

Hi @bibes and welcome to Connect. Your extreme tiredness must so frustrating.

I wanted to introduce you to @jammer, @sounder27, and @windwalker as they have experience with MAC and may be able to offer you support.

Back to you @bibes, you mentioned that you would not be treated with those antibiotics. Why is that the case?

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Replies to "Hi @bibes and welcome to Connect. Your extreme tiredness must so frustrating. I wanted to introduce..."
bibes | @bibes | Jul 20, 2019

I wouldn’t take those antibiotics the three because of the terrible side effects or possible side effects. Like losing your eyesight and or your hearing being sick which I’m not right now and even if I were I would risk that. Plus it is my understanding that only 60% of those who take these drugs are cured. And 10% the Mac comes back. And at my age it certainly isn’t worth it. As for my tiredness I have good days and bad days. Thank you for your interest.

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