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Starting Arikayce - nervous

MAC & Bronchiectasis | Last Active: Jan 22, 2020 | Replies (85)

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@jammer

I have had MAC for 6 months have been getting treated locally here in FL. am going to Mayo, Jacksonville next month. Hoping they can do more than locally. I am so tired all the time and no energy at all. Does anyone else have these problems.

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Replies to "I have had MAC for 6 months have been getting treated locally here in FL. am..."

Jammer. Tired??? That’s an understatement. The exhaustion I feel is all encompassing. If I sit down for more than 5 minutes, I fall asleep in the chair. It has become difficult to go to work and I have had to reduce my hours to part time. I’ve become a real party pooper!!! Lol

Hi I am 85 years old and was diagnosed five years ago when I had pneumonia. But Mac was

suspected isix years before that but couldn’t get a good test. Six months ago they found I had nodules in my lungs. My only symptoms are tiredness tiredness tiredness. Not every day. And I still walk 2 miles a day. There is no way I would be treated with those three anabiotic’s. For the ladies that’s doing research I lived in Indonesia in the 60s. Maybe that’s where I got it. Anyway that’s my story. Having a second CAT scan in another three weeks. Hope you all are getting better and better.