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← Return to Starting Arikayce - nervous
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I am on Medicare also and about to start arikayce. The nurse called to tell me my co-pay would be $2000. a month! That’s after my insurance, Aetna, approved $139,000. for a year. She’s sending papers for me to fill out to see if there are any grants available. In the meantime I’ve been on the big three plus albuterol in nebulizer and vest. I guess we’ll see what happens...
Replies to "I am on Medicare also and about to start arikayce. The nurse called to tell me..."
@marilynk
My dr made the case that I already have hearing loss from drug treatment and my sibling also did as well, which is why I should use inhaled rather than IV amikacin. It was approved. Also there are genetic tests that look for genetic mutations identifying susceptibility for hearing loss with aminoglycoside drugs (my in drugs and amikacin are a few). Hospital with genetic counseling centers can do this. Hope this helps.
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That's ridiculous! I thought the $1200 per month Medicare was paying for the vest was outlandish but that's nothing next to this! Be sure to try for the manufacturer's plan. I was told that the income levels are generous and was offered a screening for my copay. Because my copay is $50, I decided to not go through the screening,