Reading with interest the comments on Arikayse. I just got approved to begin shortly and I too am very hesitant about the side effects. I should begin treatment in the next week or so. Please keep us updated how you do on the Arikayse. Mine is coming from Kroger Pharmacy. I was surprised about that. I am most worried about the voice side effects. I had damage from radiation already and have trouble with it already. I have done the big 3 for 2 years. It cleared up for a short time but came back rather quickly.

I was told that there are 4 specialty pharmacies in the U.S. that have been contracted by Arikayce to produce the drug and its special nebulizer. The one that is producing it for me is Kroger Specialty Pharmacy. The name led to some confusion because I thought it was a spam call from a supermarket and hung up!