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@tigerlilly

My finger suddenly started moving involuntarily while dosing off to sleep. I would be almost asleep then I felt movement like my second pointer finger jumped for no reason. The movement has gone to my arm and head. I will be a sleep and all of sudden my head tries to fly off my neck. I have not said to much about it because it does not hurt. I just get a big surprise when it happens. I can't recall every problem because it is to much. I have been blessed even though it has been hard. Depression. anxiety, loneliness and family has been hard for me. Sorry I get carried away.

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Replies to "My finger suddenly started moving involuntarily while dosing off to sleep. I would be almost asleep..."

Has your doctor commented at all on this involuntary movement of your finger when you drop off to sleep @tigerlilly? Will you talk more about the movement going to your arm and head and feeling as though your head is trying to fly off your neck?

That's how mine started off. First my finger and then hand tremors but graduated to Spasmodic Torticollis. Usually at night, my neck was better. I had surgery, so I am 90% better. I was desperate, something had to be done! Mine is 100% GENETIC! Having it on both sides of my Mom's family has made me severely sick all of my life since a wee kid. I have truly suffered from this disease which made me do things I would never do if I was normal. Dated bad destructive men, taken jobs that required little brain power, and people noted I had problems. Embarrassed and worried that I may lose my job, I responded that I was okay, but I knew something was going on that I had no control. Back in the 1970s, nobody knew what I was talking about. I have suffered from this monster. This was back in the day when you took pride in your job, no matter how low your job was....