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spartan (@spartan)

Newly diagnosed with NET in liver

Neuroendocrine Tumors (NETs) | Last Active: Jul 7, 2019 | Replies (8)

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@spartan

Thank you Teresa for the link to the Carcinoid Foundation. My symptoms were: blood in urine and my primary was watching my liver the last few years. I had PET on the liver which showed three spots. Needle biopsy done on the largest of the spots. Other health problems: cardiac (valve since birth and defibrilator a few years ago) and diabetes. My mother died of glioblastoma at a young age so I am curious whether NET tests positive for a genetic propensity for cancer. I have clinical depression diagnosed 10 years ago…lots of health issues already so the support of this discussion group is really helpful as I journey through this. Thank you for the encouragement!

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Replies to "Thank you Teresa for the link to the Carcinoid Foundation. My symptoms were: blood in urine..."

Hello @spartan

I'm glad that you are finding this discussion helpful. From the Carcinoid website, that Tom and I provided it looks as if CA has some specialists. I've heard that Dr. Liu in Colorado is considered excellent as well.

Will you post again after you meet with the oncologist with and update?