Thank you Teresa for the link to the Carcinoid Foundation. My symptoms were: blood in urine and my primary was watching my liver the last few years. I had PET on the liver which showed three spots. Needle biopsy done on the largest of the spots. Other health problems: cardiac (valve since birth and defibrilator a few years ago) and diabetes. My mother died of glioblastoma at a young age so I am curious whether NET tests positive for a genetic propensity for cancer. I have clinical depression diagnosed 10 years ago…lots of health issues already so the support of this discussion group is really helpful as I journey through this. Thank you for the encouragement!