Try keeping a diary or calendar with each day colored to show the kind of day you've had (good, so-so, bad, awful). Note ANYTHING you did out of the ordinary--diet, stress, meds, weather, lack of sleep, allergens (esp. inhaled), exercise--again, ANYTHING unusual for you. You may see a pattern over time. Each of us has a trigger or triggers that make all our symptoms worse. Once we've learned what triggers bad days, we can work to eliminate or avoid the trigger(s). I have Meniere's (diagnosed for certain by Dr. F. Owen Black over 40 years ago) and all my symptoms including tinnitus are lessened if I increase the amount or frequency of hormone replacement meds (estrogen and progesterone). As I got older, I was able to reduce meds to a quarter of what I took almost 40 years ago every third day instead of every day. However, every time the Meniere's monster beats his way out of the closet, I need to temporarily increase meds. The first symptom is a big increase in tinnitus, from the usual background whooshing in concert with my pulse to noise so loud I can't sleep. The T usually begins to lessen within a couple of hours of taking hormones. For me, the only trigger is abnormally low hormone levels. And, yes, I have had breast cancer--which is a walk in the park compared to the hell of Meniere's. The other certainty is that, over time, you actually will become pretty accustomed to T. I know you don't want to hear that because it doesn't sound like a solution, but it is part of the solution, just as, with daily vestibular rehab (VRT) you will learn to function pretty normally with a compromised balance system.
Hi, Thanks for sharing your story. I hope learning to live with this nightmare isn't the end result for me and many others. I have been following Clinical trials ~ Frequency Therapeutics and a drug that has been developed called FX-322. You can google it and see what you think.
Thanks,
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