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← Return to Synovial sarcoma: Proton or conventional radiation after surgery?
Synovial sarcoma: Proton or conventional radiation after surgery?
Hi @rgotto41 that's great that the surgery went well with clear margins.
I wanted to introduce you to @merpreb @ristene and @puprluvr as they all have undergone proton radiation.
How have you been feeling since the mandibulectomy and free flab reconstruction? What has your doctor told you about proton radiation treatment?
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I seem to be recovering well. The swelling in my face is receding, the leg is healing, and I’m feeling better daily. The drs gave me minimal info on the proton treatment other than that it would further reduce the probability of recurrence and that I should expect “quality of life” side effects with time. I had conventional radiation treatments in 2012 for pharyngeal cancer so have already been down that road. I have significant damage to my cervical spine, extensive nerve and muscle damage in my neck and upper torso, and impaired swallowing (I have a peg tube for nutrition). This most recent cancer may result from that earlier treatment. That has made me hesitant to proceed.
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