Depending on where you live, I would be happy to accompany you to any of your appointments. I realize that the chances of us living close to each other are slim. But just in case, you could reach me by Facebook messenger. I live in the South. I am one of almost 500 Jane Peterson's on Facebook! I am the only one whose profile starts off with "Adults On The Autism Spectrum"….so, please. Do not hesitate to allow me to assist you in this way if we are anyway at all reasonably close to each other.
Your story and mine are so similar. I really don't want you to have to suffer any more pain than you already have. You are doing a terrific job of seeking answers for this extremely difficult situation. I want to encourage you and let you know that we are all here for you and cheering you on!
We have a saying around here "We are better together."