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Neuropathy and other strange symptoms

Neuropathy | Last Active: Jul 29, 2019 | Replies (76)

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@vradifegari

Hello. How are you? It is very nice to meet you all.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of ‎muscle strength, but PAIN is what don´t left me never.
I was an Early Music student. I was learning to play Early Harps. This, to write on the keyboard is very painful.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Vradi

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Replies to "Hello. How are you? It is very nice to meet you all. I had a Dengue..."

Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and other members. I noticed that you also posted in the Chronic Pain members - Welcome... discussion in the Chronic Pain group. You mentioned you now have polyradiculoneuropathy and are looking for other treatments and suggestions. There is another discussion on Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) that I think you would find helpful here:

> Groups > Neuropathy > Anyone been diagnosed with CIDP? It's very rare
-- https://connect.mayoclinic.org/discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare/

There is also another site you might find helpful. Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Information Page
What research is being done?
-- https://www.ninds.nih.gov/Disorders/All-Disorders/Chronic-Inflammatory-Demyelinating-Polyneuropathy-CIDP-Information-Page

I would also like to repeat Ginger's @gingerw question - Can you share with us what things you have tried beyond the two medications you mentioned?