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Neuropathy and other strange symptoms

Neuropathy | Last Active: Jul 29, 2019 | Replies (76)
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@lisalucier

Hi, @jola65 - glad you connected with @jenniferhunter and @butterflylan17 about the burning and tingling in your arms and legs and the feeling of an electric shock running through your body at all times. @johnbishop @artscaping also may have some thoughts for you as you look for some answers.

@butterflylan17 - have you found anything that alleviates the hand tingling when you wake up or the burning throughout your body, even for a little while?

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Replies to "Hi, @jola65 - glad you connected with @jenniferhunter and @butterflylan17 about the burning and tingling in..."
jola65 | @jola65 | Jun 19, 2019

Hi, gabapentin + ibuprofen at the same time helps a little while

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butterflylan17 | @butterflylan17 | Jun 20, 2019

Hi @lisalucier , I have the pain everyday, but some days it's more intense. I'm on lyrica, tramadol, effector, Clonazepam, vitamin D3 and synthroid. The toughest part is the extreme fatigue when I wake in the middle of the night several times.

Tomorrow I have a bone scan at mayo in eau claire (6 year breast cancer survivor) and on June 28th I see much neurologist to discuss these new symptoms. But additionally I have severe iron in my brain and tested positive for a rare hematomachrosis gene mutation on both my mom and dads side. I'm not sure if this brain iron has something to do with it also? Do u know of a hematologist that I can reach out to thru mayo connect? Thanks!
And best wishes to everyone!

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