← Return to Migraine - Aimovig and Cardiology or Pulmonology

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@lisalucier

Hi, @msb18 – wondering when you will be having the calcium score test you mentioned? Will the doctor put you on something else for the migraines, since the erenumab (Aimovig) was potentially prompting your shortness of breath?

@hedjhog – You mentioned a traumatic brain injury (TBI), so I wanted to invite you to also participate in this discussion on that topic https://connect.mayoclinic.org/discussion/adult-life-after-a-tbi.

You said you had some of the shortness of breath, as well, hedjhog, but that you are reluctant to change anything at this point. Did your doctor by chance have any comments on your experiencing this symptom while taking the erenumab (Aimovig)?

@russy – since you switched from treatment with erenumab (Aimovig) to galcanezumab (Emgality), how are your symptoms?

@quazar – due to your experience with some racing heart with erenumab (Aimovig) injections, are you going to continue with the injections, or ask to be changed to another medication?

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Replies to "Hi, @msb18 - wondering when you will be having the calcium score test you mentioned? Will..."

Re: Aimovig injections – since i have NDPH, not migraines, my neurologist had to fight to get approval for me to try it at all. Because of the cost, the Powers That Be didn't want to give it to me without the "correct" diagnosis. Ultimately, since nothing else has worked, I was approved for max 3 doses. The 3rd dose was a double dose. Since there were no positive effects, we didn't push for any further doses. My neurologist said if it was going to work at all, it would have worked by/with the third double dose. But my pain levels were unchanged. I recall that another drug I tried had similar heart racing side effects. I think it was Venlafaxine, but that one also had a bunch of other side effects that made it impossible to try long term. It also provided no relief or change. I've pretty much exhausted the list of treatments – even my long term use of CBD tinctures and capsules has not provided any noticeable benefit re: NDPH (plenty of other interesting benefits, as well as learning that I have an adverse reaction to THC). My sister still suggests electroconvulsive therapy to "reset" my brain. I never can tell for sure whether she's kidding (sisters, you know LOL), but with as often as she's suggested it, I think she's serious. I'll have to ask my neurologist about that.

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