Bowel or fecal incontinence and how to manage it

Posted by Sarah @emyliander, Jun 11, 2019

I am 73 yr old femal with diagnosed Celiac, Microscopic Colitis and IBS. i don’t have diarrhea, BM’s are either soft formed or constipated small hard stool, but either way I can be incontenant of small amount of stool. I wear a pad in close knit underwear with legs, so nothing can escape. Any advice from people with same problem would be comforting and useful. I would like to know how you handled it on social occasions.
Thank you, Emyliander

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for jeanne51 @jeanne51

Thanks for everyone's input regarding fecal incontinence. My constipation has returned with a vengeance since I stopped the Miralax for a few days. I will call my doctor tomorrow because I have either one extreme or the other and I cringe when I have to pass gas because I never know if it's just gas or stool. Metamucil alone does not help the situation, even if I add a "Phillips" magnesium capsule at night.

Jump to this post

This is definitely a “low tech” suggestion but my recent bout with constipation has been resolved (even if only temporarily) by prunes! I remember as a child many years ago laughing at my mother with her prunes. Well, they helped me! A bit tricky to find the right “dosage” but sure better than the commercial laxatives, fiber, etc etc.

REPLY
Profile picture for JVS @lacy2

Hello and thank you .. No haven't seen a motility disorder specialist but was referred to a place where she had me get up on a table and on hands and knees and do some type of tightening of the rectal muscles but unfortunately at 75 at the time and just put on new meds, it didn't work out and I was too wobbly... and I didn't go back or really continue at home.
I sometimes wonder if everything "down there" has collapsed.
When I had radiation to Cervix 1985 the tumour (about the size of an apple) was inoperable so I feel I have been carrying around a radiated uterus and ovaries all these years; plus the radiation damage.... they showed me on a monitor the inside of my bladder and when sprayed liquid on insides it bled; and then the ibs-d... if it was indeed that; and c.diff with fecal incontinence...
I have had blood in urine quite visible 3 times over about ten years, once for 5 weeks; I even took photos sounds silly but alone and wanted proof...
sometimes when I have had diarrhea about 8 times in a row (dont read this, men).. all of a sudden I get anal/vaginal/bladder cramps which remind me a little of my younger sexually active days - sort of like a climax but it is about ten times as strong and actually hurts so much I cry out and family member gets me a heating pad.. it doesn't last long but I get it about six times a year.... haven't mentioned it to a doctor and haven't even had a family doctor for a year. I suppose it's funny in one way but honestly the pain is intense and I have never found much info about it on the web except once a site had a small note that it was from mixup/damage of the nerves in that area receiving signals: all I can say is its embarrassing and very painful.

Jump to this post

@lacy2 I am surprised that anyone would ask a 75-year-old person to get on their hands and knees. I'm sure there must be other pelvic floor therapists who would have better suggestions than that. If it were me, I would refuse that type of exercise and tell them I need something that is more manageable for my age and body.

As you have had a lot of surgeries as well as radiation have you considered going to a specialty medical center like Mayo Clinic or a university medical school? These facilities are research-oriented and often have a better track record of solving hard-to-treat problems.

Are you able to go to one of these medical facilities?

REPLY
Profile picture for jackiem95 @jackiem95

This is definitely a “low tech” suggestion but my recent bout with constipation has been resolved (even if only temporarily) by prunes! I remember as a child many years ago laughing at my mother with her prunes. Well, they helped me! A bit tricky to find the right “dosage” but sure better than the commercial laxatives, fiber, etc etc.

Jump to this post

@jackiem95 .... good for you! yes I remember my grandmother "stewing" dried prunes on stove in water; I think she also did same with senna pods??? J. Now, if we could just find a simple method to fix diarrhea! J.

REPLY
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@lacy2 I am surprised that anyone would ask a 75-year-old person to get on their hands and knees. I'm sure there must be other pelvic floor therapists who would have better suggestions than that. If it were me, I would refuse that type of exercise and tell them I need something that is more manageable for my age and body.

As you have had a lot of surgeries as well as radiation have you considered going to a specialty medical center like Mayo Clinic or a university medical school? These facilities are research-oriented and often have a better track record of solving hard-to-treat problems.

Are you able to go to one of these medical facilities?

Jump to this post

@teresa... thank you so much for your comment.... I would love to wave a magic wand and be sitting in a waiting room at Mayo Clinic, am in Northern Ontario Canada... but Mayo Clinic is a well known name in this Country and before joining would read web check results from their site. My daughter said she would pay for me to attend one of those expensive private clinics (we dont have 2 tier health system though) in Toronto but two things; one being I would think they are closed re Covid and I also find travelling very hard and to be quite honest have almost become housebound over the past few years after having CDiff and dr changing up my medications; and haven't had a family doctor for over a year. In Toronto they do have "teaching hospitals" whereas where I live we don't have neurologist or rheumatologist etc. but have to go out of town and its a long long wait. Just before I got c.diff from too many antibiotics, it was at a teaching hospital I was diagnosed with narrow angle glaucoma, but then after 2 appointments, couldn't travel back there as 4 hour each way and overnight stay and fecal incontinence didnt help. Nice to live in a bigger City when have multi medical problems.
Thanks again for your kindness in helping me..... J.

REPLY
Profile picture for jackiem95 @jackiem95

This is definitely a “low tech” suggestion but my recent bout with constipation has been resolved (even if only temporarily) by prunes! I remember as a child many years ago laughing at my mother with her prunes. Well, they helped me! A bit tricky to find the right “dosage” but sure better than the commercial laxatives, fiber, etc etc.

Jump to this post

@jackiem95 @jeanne51 I have recently started eating prunes because they’re good for osteoporosis! It’s sort of a symbiotic relationship between calcium and prunes. Calcium, which is recommended of course for osteoporosis, tends to be constipating, and prunes are the opposite, so it works out well! I do find there is a delicate balance in how many prunes I can eat. Six is the number recommended for osteoporosis but three is my max.
JK

REPLY
Profile picture for JK @contentandwell

@jackiem95 @jeanne51 I have recently started eating prunes because they’re good for osteoporosis! It’s sort of a symbiotic relationship between calcium and prunes. Calcium, which is recommended of course for osteoporosis, tends to be constipating, and prunes are the opposite, so it works out well! I do find there is a delicate balance in how many prunes I can eat. Six is the number recommended for osteoporosis but three is my max.
JK

Jump to this post

@conrenandwell Thanks for your reply. I have previously used dried prunes for a couple of years but had to quit because they gave me so much gas. Now that I have the rectal weakness issue and don't know if it is gas or stool sensation that I feel this is no longer a good solution.

REPLY
Profile picture for jeanne51 @jeanne51

@conrenandwell Thanks for your reply. I have previously used dried prunes for a couple of years but had to quit because they gave me so much gas. Now that I have the rectal weakness issue and don't know if it is gas or stool sensation that I feel this is no longer a good solution.

Jump to this post

@jeanne51 Prunes do cause gas, definitely. This was something that I had been thinking about this week since it could be more of a problem as we finally emerge from our home a little bit. I plan to eat them close to bedtime, hoping that effect will pass during the night.
JK

REPLY
Profile picture for JK @contentandwell

@jackiem95 @jeanne51 I have recently started eating prunes because they’re good for osteoporosis! It’s sort of a symbiotic relationship between calcium and prunes. Calcium, which is recommended of course for osteoporosis, tends to be constipating, and prunes are the opposite, so it works out well! I do find there is a delicate balance in how many prunes I can eat. Six is the number recommended for osteoporosis but three is my max.
JK

Jump to this post

@jackiem95 ...I do best with Miralax or the various Big Box Stores' generics. I take a 12 oz glass of water with a large measure of the lax about every third day. I do eat a few prunes, but I have better luck with a good bowl of grits and eggs.

REPLY

@lacy2 - It is very upsetting to read what you and others have to live with. I have a minor problem, but I notice it’s little too frequent now. I had damage to the Amal sphincter during childbirth.
I am aware that some people need ostomies to deal with constipation and I’m sure it could work with diarrhea too.
I have thought about having one since my sphincter is getting weaker, not yet though. It comes down to quality of life.

REPLY
Profile picture for Ingegerd Enscoe, Alumni Mentor @astaingegerdm

@lacy2 - It is very upsetting to read what you and others have to live with. I have a minor problem, but I notice it’s little too frequent now. I had damage to the Amal sphincter during childbirth.
I am aware that some people need ostomies to deal with constipation and I’m sure it could work with diarrhea too.
I have thought about having one since my sphincter is getting weaker, not yet though. It comes down to quality of life.

Jump to this post

@INGEGERD ... just wondering, I thought there was an operation for repairing anal sphincter? Friend in UK had same with childbirth and we didn't correspond that often as I am in Canada, but kept in touch, and was years before she told me she had an ostomy? It is too late for me to have anything like that, honestly I am overwhelmed with what I have and one more thing ... well and at 77 . I was also cut between vagina and rectum 1962 first child.... but I feel my problems started after radiation to pelvis for cancer of cervix done 1985..... I agree: quality of life. I applied for M.A.I.D. last year, "informally" but didn't qualify but the rules have changed recently .... However, this is about YOU so I wish you the best and haven't read any of your posts but have you tried the exercises etc? I take Imodium so does my spouse .... otherwise its ten times a day. Please take care of yourself.... J.

REPLY
Please sign in or register to post a reply.