← Return to Bowel incontinence
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Digestive Health | Last Active: Jan 18 3:14pm | Replies (133)
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Replies to "Hi Amanda, I have consulted my gastro in the past but not since this issue exacerbated...."
I am on linzess for about 3 or 4 months now. I was using miralax before and taking double the recommended dose per day. But that was per doctors orders. I was told to take a single dose daily and if I go a day with no poop to take a double dose the next night and if I still do not go to take a triple dose the next night and so on. Finally I was just taking a double dose daily to keep things moving but it was often the firmness of pudding. My big issues is I have Gastroparesis very badly and IBS mostly C. So when my colon stops moving even for a few hours my stomach stops to and often it will take days or even weeks to get everything to calm down and move again. I have a gastric pace maker that helped my Stomach to empty better and I can not say enough good about it. But I was having a lot of accidents day and night so we are trying linezz. I am taking it in the Evening and I am sometimes having accidents at night but overall the urge incontinence i was having got better during the day. I can handle it at night I sleep in a diaper so no big mess and I shower the next morning anyway. So the large urge accidents I was having has slowed. But The minor anal leakage is much much worse with it. I still wear a diaper 24/7 because I do not trust a fart and I have ladder urge and interstitial cystitis going on 30 plus years but all the bowel issues is the last 5 or 6 years since getting the GP disease. So I gave up on pads and pull ups and I wear something I can trust but OMG they are 3 bucks a piece for a diaper. I am to the point I do not give a shit what other think and I came to the conclusion no one cares what type of underwear I have on. But the constant leakage I have now since starting the linezz even on a lower dosage at first it is like a mucus my bowel discharges and it causes inflammation and swelling and burning that flare up the hemorrhoids even more. So My doctor prescribed a new med that works a lot like linzess but different. She told me it has shown to help with gastric emptying to which is what GP is and there are very few meds for GP and none are cheap. So I went to fill it and I guess it makes linzess look like pocket change and my insurance refuses to buy it at $1600 a month. So we are trying to appeal it but it does not look good. The New med is called Motegrity. You might ask your GI about it and maybe your insurance will cover it. She said it has far less negative side effects over linzess. I am on a medicare Advantage plan and my linzess is only $4.15 my cost and I have the best plan Humana has to offer. The Gold Choice plus. I am 47 and had to retire and take my SS-disability because of my joint and gut problems. So I feel for what you are going through. For sure don't give up on living. If you have to wear a quality diaper and just live life. You can take a med that stops the odor if you do have an accident in public. I like the NorthShore diapers best and they do offer free trials if you go to their webpage.