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Replies to "I'd like to invite @helena4000, @maryd, @michelecallahan, @kylehop, @msunderland to this discussion as they have all..."
Heart & Blood Health | Last Active: Oct 20 8:57pm | Replies (21)
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I'd like to invite @helena4000, @maryd, @michelecallahan, @kylehop, @msunderland to this discussion as they have all discussed myocarditis in one form in the past on Connect. You may also find this video Q&A that took place on Connect in the past helpful, https://connect.mayoclinic.org/webinar/video-qa-about-myocarditis/. I am sorry to hear about your frustration with not getting the timely answers you are looking for. Have they discussed with you what the purpose of tapering you off of the pericarditis medications is for and what the plan for that is moving forward?
Replies to "I'd like to invite @helena4000, @maryd, @michelecallahan, @kylehop, @msunderland to this discussion as they have all..."
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@helena4000 @michelecallahan @JustinMcClanahan there are also two events coming up with the myocarditis foundation. One is in a few weeks in New York and the other in the fall in Philadelphia. You can find out more about these events on their website. I’ll be attending the Philadelphia event. It’s for myocarditis survivors. I believe Dr. Cooper may be in attendance also. He’s considered one of the world renowned specialists on the disease. It should be a very informative session with the panel of doctors etc. I encourage everybody to look into it and see if it’s something For them.