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Statin Intolerance: What did you do?

Heart & Blood Health | Last Active: 3 days ago | Replies (88)

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@alanaspeck

Thank you backing up the importance of statins. In my family we have a genetic disorder which causes us to have super high cholesterol despite eating a healthy diet. It has been the killer on my mom's side. My cholesterol is over 300 and that's after months if Lipitor. So Cardiologist doubled my dose. Yes, I get the "muscle" pain but I already deal with extreme chronic pain anyway and take meds for it so...I'm a lil tougher than that and will deal with it so I do not have a 4th heart attack.
Just my opinion but I'm less likely to take my cardiovascular health into my own hands based on numbers I took off the internet. And I would certainly be doubtful of a Dr whom agreed. I have a pacemaker and received diagnosis of DVT this week.
I will add the COQ10 to my regimen though. Thanks for the tip.
Listen to your Drs folks. Stay knowledgeable but don't second guess your Drs based on the internet. It could be the difference between life and death! This is your CARDIOVASCULAR HEALTH not a common cold.❤

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Replies to "Thank you backing up the importance of statins. In my family we have a genetic disorder..."

Two decades ago I saw the head of the Lipidology Clinic at Johns Hopkins. My two siblings and I have an inherited lipid disorder (a mouthful - familial hyperlipoproteinia ! I got the diagnosis from him.). My tryglicerides were well over 800 just for one.

He told me there was nothing to be done until they developed gene therapy - and for the meantime to take statins, that my body basically manufactured excess cholesterol.

Then he glanced at a textbook (I don't recall a computer involved LOL) and identified the type of the disorder he thought we had, plus the subtype. Said that perhaps if I lost weight, exercised, avoided all refined carbs and alcohol, I would improve.

I did all the above and sure enough my lipid panel decreased to an almost normal level. Since then I've been trying to continue this healthy behavior, though not quite making it on the carbs and alcohol, and have been battling the lipids panels reading. I'm the only sibling to avoid statins. (my parents took statins too).

Both brothers, one especially, developed rhabdomyalysis, one to the point it was damaging his kidneys. That brother had had a heart attack before age 40, and in fact, was scheduled for surgery (one or two stents, at least) when he passed away in his sleep last year. It was before the operation.

My cardiologist (seeing me mostly for AFIB) told me I HAD to start statins owing to my lipid creep - weight creep at the same time, not by coincidence. I pleaded with him to give me another chance, and he gave me six months at most.

I went on the KETO diet, bringing my weight down to very slender and he told me, my lipids results were "perfect". Hooray, no statins! (It was sheer hell to do without carbs so rigidly). He said the diet contradicted everything he'd learned in med school, but there was no contradicting the results. Now my weight has crept up again and though I haven't checked my labs yet, I'm back on KETO hoping and praying I can maintain it , while being always worried about the level of saturated fats I'm consuming.

Just bear in mind, you with inherited lipid issues, that there ARE behavioral approaches that may help you avoid statins (I also take several supplements high in Omega-3s ) . If you aren't sure, you might want to consult a super specialist - lipidologist - like me. Statins DO have side effects as this thread proves. One that especially motivated me to avoid them, is that they apparently contribute to dementia! My memory problems are already worrying, so that helped me make the needed effort.

Go for it!