Just Diagnosed and So Confused; Feeling Lost

Posted by kathysway @kathysway, Jun 2, 2019

so far I've been told I have invasive ductal carcinoma estrogen rec positive strong (90-95%) and progesterone recp positive (weak3-5%) HER2 equilvocal (2+) fish pending I'm still not sure what all this means waiting for my onco score to come back how do I know what treatments to do first i was told i would'nt need chemo but after surgery now the dr said depending on what the onco score is I may have to have chemo with the Radiation should I get a second option before I do anything I'm feeling lost.

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@6750

I too have ivdca & don’t understand what is going on. 4 red devil chemo + 16 half dose chemo & 19 radiation treatments. Out 6 months. Next 6 mo f/up is Dec. only blood work has been done.
Should more testing be done. Stage 4.
First lumpectomy then dissection—13 lymph nodes
-3 tumors. Clean margin. I am 72 & all alone in this great big world. Friends live out-of-town so it’s just me alone to take care of me.

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@6750
You have more strength to get through this journey then you may be giving yourself credit for... but we all need to feel connected with others at a time like this. Does your community have a cancer support community center? It's a great resource for meeting others with all forms and stages of breast cancer and receiving/sharing invaluable information. Do any of your local churches have a Stephen Ministry program? You don't need to be religious to have a SM caregiver... she will meet with you regularly and serve as a sounding board for your fears and frustrations. Connectiveness is participatory, and one needs to initiate it when living alone. In the meantime, this Mayo Connect group is always here for you, albeit remotely.

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