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Just Diagnosed and So Confused; Feeling Lost

Breast Cancer | Last Active: Jul 12, 2019 | Replies (61)

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@cctoo

Thank you! .mine was stage 2 also.....May not be getting as good care as you ...I also have alextasis, but drs. Think it is nothing...have trouble with breathing sometime.

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Replies to "Thank you! .mine was stage 2 also.....May not be getting as good care as you ...I..."

@cctoo It's my Stage 3 that's uncertain, unfortunately. as it's the type of cancer (NET) that can't get rid of and can show up anywhere so (bone, pancreas, brain, liver, etc) that's why the PET scans every 6 months. CCTOO, have the doctors mentioned to you "The Vest" system by HillRom for your lungs? Mine was covered by my insurance. It's basically a vest that looks like a life jacket and has hoses attached to a machine that causes vibrations/thumping to the chest wall to help prevent mucus from sticking and cause air movement. I had to stop it following my second surgery and radiation (burns) but am starting back on it. Apparently, I also had trouble with radiation pneumonitis which caused a lot of coughing and brown sputum production, but that is cleared now. You might want to Google that and ask your pulmonary doctor.