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Just Diagnosed and So Confused; Feeling Lost

Breast Cancer | Last Active: Jul 12, 2019 | Replies (61)

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@kathysway

Can someone please tell me if I'm over reacting or not as I sit here still waiting on the second biopsy on another lymph node that the Dr. found when they did the ct scan for radiation and now everything is on hold I understand that there are a lot of people going through so much worse than I am but everyday that go's by without a call for the appt to have this test done makes me feel like I'm not important the Dr. today me I could wait up to three months for treatment but my cancer is invasive so in my head that's not something that can wait I haven't cried once since I found out in April but I'm starting to get really mad and I really don't know how to handle being put on the back burner because that's what I feel sorry to whine I know that all of you are having problems and I pray for ya'll everyday thank you for reading.

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Replies to "Can someone please tell me if I'm over reacting or not as I sit here still..."

@kathysway
Every network is different... but, I've learned that, when I'm proactive, it helps relieve my stress. If I was in your shoes, I would call the local hospital's appointment scheduler and ask if there was a biopsy order on file from my doctor. If s/he says no, then I would ask the scheduler if s/he kindly would call my doctor's office and request the order. (Give the scheduler the idea that the paperwork may be unintentionally delayed somehow.) Hearing from the hospital often gets the paperwork jam rolling at the doctor's office. It's worth a shot (there are no downsides to nudging the hospital's appmt. scheduler on your behalf). Also, if your hospital has a breast cancer navigator nurse, she would be another resource I might use.

You're not whining, @kathysway. The only person that matters right now in your world is YOU. You are important. Now, I don't know all the details of your situation and so I can't give you the answers you need. But I can tell you a bit about how the urgency we feel doesn't often line up with the lack of urgency we may feel the medical professionals have.

i'm sure it must be frustrating that your radiation and everything else is on hold with the discovery of something from the CT scan. (Bring on the anxiety, right?) But your team has to wait for the biospy to be extra super sure that the original diagnosis and treatment plan are still the right ones for YOU. The wait is tortuous, but I know you want to get the most effective treatment. So this may be a case of slowing down to get it right.

Invasive cancer means that the cells have grown beyond the ducts or lobes into normal, healthy tissues. Most breast cancers are invasive. That sounds scary too. But invasive doesn't mean Zombie apocalypse, run now and fast. It is a description that tells your cancer team what type of cells they're dealing with and gives them information to get the treatment plan right. While you want treatment right away, you also want the right treatment. I know you just want to get a move on and zap those cancer critters or poison them or whatever it takes, and you will.

Having said that, the squeaky wheel gets the grease. Be patient but you can also follow up to get the appointment scheduled. I hope that helps.

PS: Whining is permitted. But that was not whining.

I agree that you are not whining! I also agree that the squeaky wheel gets the grease, I also find that for myself it helps to just call and talk to the scheduler or the nurse and just ask for clarification. If I express my anxiety and feeling like I don’t understand what is happening or what the plan is, they are usually very helpful!