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Just Diagnosed and So Confused; Feeling Lost
Breast Cancer | Last Active: Jul 12, 2019 | Replies (61)Comment receiving replies
Oh geez just got all set for radiation treatment got it all set up went and got ct scan only to be called today to be told everything is on hold because the dr saw fluid inside my under arm and a problem with another lymp node one step forward two steps back oh well lets see whats what now has anyone else ever had this happen
Replies to "Oh geez just got all set for radiation treatment got it all set up went and..."
Oh geez is right! Sometimes you just need to let that out! It is hard knowing you are sick and not know how to fix it. It is frustrating with the hurry and wait syndrome that occurs in every aspect of our lives, but when we feel like our lives are threatened, that waiting can be excruciating. I do not know your circumstances, but if you are in a position to go to May Clinic, I have had polar opposite experiences with cancer treatments.
My personal experience was similar to yours, waiting 4 to 6 weeks for appointments then changing plans, not enough information to prevent frustration from building, and my personal worst....... having my questions and concerns dismissed out of hand.
My husband had a consultation the Mayo Clinic. Our itinerary was waiting for us when we checked in and all tests and specialty appointments were in two neighboring buildings over 3 days, with breaks created for lunch and resting. The morning of our appointment with his doctor, she had already reviewed all of his tests and spent an hour or more answering all of our questions and with us, formulated a plan for treatment. We went home and he received a couple months of oral chemo before we returned to the Clinic for his stem cell transplant. Our local oncologist works with Mayo Clinic for his treatments, and the best thing yet for this otherworldly care......... our insurance loves them, they charge less than most because of the model of care.
This is why I am a Mayo Champion even though I live 2,000 miles from Rochester.
I am just adding you to my prayers now. Your life will be forever changed but in many ways my life is better for having cancer. I have grown a sense of humor, and I truly care about each day and who it brings into my life.
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Thank you for sharing your story as we can all learn from one another. I know you’ll be okay but we’ll keep you in our prayers.
I’m triple positive with invasive lobular carcinoma. I just had 8 rounds of chemo before my lumpectomy and will also have radiation. I’ll take the estrogen blockers for 5-10 years. I’ve learned to take it a step at a time and not look too far ahead. Baby steps.