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Just Diagnosed and So Confused; Feeling Lost
Breast Cancer | Last Active: Jul 12, 2019 | Replies (61)Comment receiving replies
I had both the oncotype and the Mammoprint test done. You can request both. They are a bit different. Both showed that I have only a 3% chance of reoccurence if I take the endocrine therapy. In my experience, the lumpectomy and radiation were non events. I did not have the chemo. THE WORSE by far are the anti cancer estrogen blocking drugs you take for 5 years that have all these side effects. I thought I was done after radiation, but the worse was yet to come. I am staying on the drugs, but hate them with a passion.
Replies to "I had both the oncotype and the Mammoprint test done. You can request both. They are..."
I completely agree. The worst part for me has been the drugs after both lumpectomy and radiation. I tried arimidex, could not do it, the side effects made me miserable. I’m on tamoxifen now which is better, but still having major hot flashes and fatigue. I get worn down so quickly, have you experienced this?? I thought after recovering from surgery and radiation I’d get my energy level back, but it’s not happening. I exercise, am active, but still get tired very easily. Wondering if I’ll ever get back to ‘normal’.
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What was your Oncotype score? Mine was 20 and now on anastrozole for 5 years😌