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aayre (@aayre)

UCTD, low MCV, low MCH and low neutrophils

Autoimmune Diseases | Last Active: Apr 25, 2020 | Replies (6)

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@carolhastings

Thank you, Dr. Goldstein, for your very helpful explanation regarding the vagaries of UCTD. Although I consider myself very grateful for such a non-threatening "disorder" (my blood results indicated that I have 3 out of the 4 markers for Lupus), I can't help wondering if there is something to counteract the chronic fatigue that accompanies the disorder. Having been put on Hydroxychloroquine, any pain that arise can be easily eliminated with Advil, Alive or Aspirin (and for that I am truly grateful). I'm 72; normally active (exercise religiously) but no matter how much sleep I get, I am chronically tired. Is it unrealistic to think that there may be something to help with this in an effort to experience "quality of life?" I've heard all the "caveats" (Are you depressed?). If I am, I certainly don't know about it (72; retired; love to go line dancing at a Senior Center here in Tulsa; just had a dog certified as as "Therapy Dog;" love being retired). Is fatigue just "part of the package" for which there is no remedy? In other words, be grateful that's all I have to deal with? It's enough to tempt one into getting some pep pills "off the street" in order to enjoy what's left of life on Planet Earth! (that's a hyperbolic comment, but don't think it hasn't crossed my mind). I'm sending this in case others have felt likewise (and wonder if I'm just lacking in the "grit" to wade through the fatigue). Thanks in advance for your perspective in this matter.

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Replies to "Thank you, Dr. Goldstein, for your very helpful explanation regarding the vagaries of UCTD. Although I..."

Thank you for voicing what so many of us feel! Grateful to have a non-life threatening disease but tired of the fatigue! I am lucky enough to get a 4-5 good energy days in a row but after that I am exhausted by 5 pm or earlier. I also try to stay active but it’s tough some days.

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