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I took part in a clinical trial. Have you?

Just Want to Talk | Last Active: Jul 12, 2019 | Replies (20)

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@colleenyoung

@2011panc, how long is the trial period? In other words, how many years post transplant do they monitor you? Does this additional monitoring give you comfort? Was testing for the CRCA gene part of this same trial or genetic testing that you did for a different reason?

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Replies to "@2011panc, how long is the trial period? In other words, how many years post transplant do..."

@colleenyoung The trial requires you to be more than one year post transplant. Readings are taken twice, one year apart. The additional testing is, to me, minimal. The testing for the BRCA gene was part of this trial, otherwise I would not have had it done because I have no other indications of a need for this testing. Not all testing results will be automatically released to me, but I am sure the BRCA gene test will be provided to all participants because it is such an important test in relation to successful treatments. I cannot say that the testing gives me comfort, per se. Knowing my particular and diverse medical history encouraged me to pursue this trial, as I believe that I have much to offer in many areas and for many people. I do not expect changes for myself, but hope to provide a better outcome for other people that may need to address any of the same issues with which I have dealt or am not dealing.