← Return to I took part in a clinical trial. Have you?

Discussion

I took part in a clinical trial. Have you?

Just Want to Talk | Last Active: Jul 12, 2019 | Replies (20)

Comment receiving replies
@2011panc

I volunteered for a post pancreas transplant research project measuring the effectiveness of the transplant. The project is not over yet. It checks mainly activity and blood sugars by several avenues over a period of time in intervals. I wanted to join this research for several reasons: (1) pancreas transplants are still so rare that many people still believe they are not done; (2) results of pancreas transplants are still unpredictable, with some people having completely reliable function and many still requiring frequent glucose testing and injections; (3) my road has not been smooth and I believe my experiences have a great deal to offer to researchers for future transplant patients; (4) the research is neither invasive nor difficult; and (5) expenses are paid. I have already learned that I do not have the BRCA gene and feel some relief from that knowledge. I am open to questions. Thank you for this opportunity to share.

Jump to this post


Replies to "I volunteered for a post pancreas transplant research project measuring the effectiveness of the transplant. The..."

Wow, that is neat! Thank you for sharing your pancreas transplant story. You're right, this is exciting news, congratulations on your transplant!

@2011panc, how long is the trial period? In other words, how many years post transplant do they monitor you? Does this additional monitoring give you comfort? Was testing for the CRCA gene part of this same trial or genetic testing that you did for a different reason?