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Mrs. H (@amberheilman)

What questions to ask

Neuropathy | Last Active: May 30, 2019 | Replies (14)

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@wisfloj I've given up my quest to determine the root cause of my idiopathic small fiber peripheral neuropathy. It's been with me for over 20 years before I even decided to get a diagnosis. I have no medical training or background but do a lot of reading and searching on the topic. There really is no cure for neuropathy. Neuropathy = dead, damaged or compressed nerves and that's pretty much the bottom line. Sometimes surgery can help if nerve compression is the root cause. My goal has been to keep mine from getting any worse or slowing down the progress. I heard a talk by an 80+ year old research neurologist from the University of Minnesota who said if you live long enough you will get neuropathy because sooner or later nerves die. I think nutrition plays a large part, as well as eliminating sugar and alcohol which are both bad when you have neuropathy. I think the best that we as patients can do is be our own advocate, learn as much as we can about our condition and find something that treats or helps reduce our symptoms.

The Foundation for Peripheral Neuropathy has a lot of good information on their site but it's just the tip of the iceberg.

One of the things that got me to focus more on nutrition was the TED Talk "Mind your Mitochondria" by Dr. Terry Wahls

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Replies to "@wisfloj I've given up my quest to determine the root cause of my idiopathic small fiber..."

Thanks John, excellent TED talk. and I thought my big green smoothie every day was sufficient!😳