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@merpreb

@parus- That's an incredible fatigue isn't it? No matter whether I napped or not I never really felt refreshed. You are at the half-way point and when I reached mine (although different chemicals) my body started to tolerate it better, not feeling so ill. When I don't feel well I'd rather be alone and not talk too- too much of an effort. I wish my husband didn't like to talk when I'm ill! lol
I'm so glad that you rest a lot, I'm not sure that there is a choice with that kid of fatigue. So your family don't know?

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Replies to "@parus- That's an incredible fatigue isn't it? No matter whether I napped or not I never..."

So Sad that the family members who should be your crutch to lean on! Many of you are blessed with sympathtic family memebers and friends who help. But the unfortunate ones are like many of us who just get doubts and critisim from them!
As I believe, in many instances that the Guardian Angle shows up when you least expect it!
Keep posting on MAyo Connect! I know I'm not sure if I would have made it this past year without the help, Love, and Guidance I have recieved from everyone here at Mayo Connect!
Suncance

@merpreb No need to tell family or anyone else. I have 2 younger sisters and I don't want to face the music and the pseudo caring. All we have in common is DNA. I just can't play that game anymore. They both have loving families, nice homes, etc. I truly am happy for them and not the least bit envious. I just know they can't understand and that's okay.
My youngest son has so much garbage on his plate with in-laws I would not add more. Since things are stable at this point there is no need to raise red flags. My youngest doesn't need to think the only family member he has left in his life may croak. Family stuff is complicated. I would like to have family that cares and is supportive-I come here and it helps.
I don't know anyone who has had bladder cancer and has gone through treatment with BCG. It has been used for years. I feel like a walking disease. I know several breast cancer survivors and this type of cancer is acceptable but "down there" stuff is not. Hanging my head in shame and ought not to be. Not wanting around anyone.
Okay, my attitude is dulled by many things right now. I appreciate all of the chin up, positive encouragement and just not there right now. why I have not been posting very often. Hiding away and feeling sullied all over again.