← Return to Just diagnosed Stage 3 CKD: Should I be referred to a nephrologist?

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@gingerw

@pmsfarmer Welcome to Mayo Clinic Connect. We're glad you're here! Great to hear you are looking after yourself, and willing to be proactive in your own health. I can only tell you my story; I'm not a medical professional. I was diagnosed with kidney disease approximately 15 years ago, and have maintained a stage 3 for the last 7 years by virtue of lifestyle and diet. The cause of my kidney disease is a very rare autoimmune condition. It would be good if your doctor can tell you the cause of your kidney disease; the two main causes are high blood pressure and diabetes. As @kamama94 mentioned, you can learn to live with your kidney disease and to slow the progression of it. I would certainly go for a second opinion with a nephrologist, so you can get all of the information possible there is a lot here on the Mayo Clinic website. Also go to http://www.rsnhope.org for a lot of information. The founder of that organization is a four-time kidney transplant recipient who has dealt with kidney disease since the age of three. I am involved with her patient lead support groups. Please come back and let us know how you are doing, and how we can help you.
Ginger

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Replies to "@pmsfarmer Welcome to Mayo Clinic Connect. We're glad you're here! Great to hear you are looking..."

Hi Ginger, I know it has been years since you posted this, but could you mind telling me what the rare autoimmune disorder turned out to be in your case? Someone I love is going through something remarkably similar at the moment and the doctors are having trouble diagnosing what the autoimmune disorder may be.

I appreciate your help with this if you are still around!