Still fresh from the conference which ended yesterday. It was harder than I thought it would be to find Deborah since I didn’t know what she looked like? Also there was a lot of folks! Dr. Huit pointed that out.. The first meeting she went to in 1994 had only 20. I’ll try and post some initial thoughts. It was quite intense and very technical in part. Overall I don’t think there were any major developments reported except perhaps for some work being done on phages. Apparently the medical world was quite excited about a 15 year old girl in England who had a lot of complications from a double lung transplant and recovered rather miraculously through the use of phages developed specifically for her. This happened a few weeks ago and was the first successful such use to treat NTM. I thought that was the most promising albeit challenging and very early.
A speaker from Toronto mentioned that NTM is a ‘reportable’ disease in Canada and someone in the audience questioned why it isn’t in the US. Does anyone know anything about what that means? I’m not clear about the ramifications. I heard about a research registry; wouldn’t that do the same while maintaining privacy?
Will post more when I get home or at the airport if my flight gets delayed due to the storm blowing through Dallas!
Mary