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How does hearing loss change you?

Hearing Loss | Last Active: 6 days ago | Replies (148)

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@scottk

Interesting that you mentioned the 71/2 months it has gotten worse. I feel very similar. It was like I woke up one morning and it didn't matter if I had my fingers in my ears....I could not hear! At first I thought it was my hearing aids but after numerous trips/adjustments back and forth from the audi and ENT's I realize that my hearing is going rapidly. Add the tinnitus in and really is tough! I know mine is a genetic issue....I have 5 siblings and they have varying degrees of hearing loss. My aunts and uncles from my mom's side were all near deaf before they passed on. The one thing I do not want to withdraw from conversation like you mention....too many good things going on that I want to hear! I have 11 grandkids and I just make the point that they need to talk slower and directly to Grandpa! They are funny.....my one granddaughter who is 6 thinks that if she whispers in my ear that will help! Hearing loss is tough but just look around you and you will see people with bigger problems. Hang in there and be a good advocate for the cause! Take care.

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Replies to "Interesting that you mentioned the 71/2 months it has gotten worse. I feel very similar. It..."

@scottk It’s very interesting that you have an obvious genetic hearing loss that runs in your family. The HLAA2019 convention had several seminars about genetic testing. They are mapping genes that cause hearing loss and have found 160. If you and your family decided to have yourselves tested for research you would need to find a specific lab that is performing those. You would not just use one that is just mapping your heritage. There’s info at the end of this link to direct you to finding out more about the testing.
https://www.cdc.gov/ncbddd/hearingloss/freematerials/ParentsGuide508.pdf