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How does hearing loss change you?

Hearing Loss | Last Active: Jun 22 9:15am | Replies (172)

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@bookysue

Thankful Nurse Headshskes- Wow thank you so much for what you do. The letter spelling out what your needs with the docs other than me verbalizing/ reminding them even it is in the chart. That is an awesome idea that any person with a hearing loss should do. my Penn Care has done an awesome job but they do forget at times.
This will perhaps be my last convention-expenses are getting up there for me. This will be my 3 rd year .
I have 15 yest old hearing aids- I brought Nano aids last year as to be my backup. They do help. Closest aids to be a good higher than mild loss. ( most are for mild loss) I was amazed. I even spoke about them at the Philly chapter .
I hope you go to the convention- has a good research talk and I would like to meet you.
I am pushing advocating better commutation between docs and patients. I am also trying in a small way to get 911 to be done text style
We have come s long way with loops but Philly is not up there
We have a better captioning system in movie theatres . Other theatres needs some work. I will be helping someone in Philly on that . Weird and absurd placement of open captions I Arden, etc
We are far better than the UK .wow what issues they have there
Take care all. Poodle Dylan needs me to play .

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Replies to "Thankful Nurse Headshskes- Wow thank you so much for what you do. The letter spelling out..."

Thank you very much. My husband and I have been to at least 6 or 7 of them and have kept up to date with all of the research that has been going on with hearing loss, tinnitus and hypercusis, etc. Each state needs to work on the 911 issues since the federal government has given them the responsibility to work on it individually. In WI, when I was there, they were nearly ready to implement a plan that worked with all cell phones statewide. It was really exciting since it was the Hearing loss/deaf groups that worked behind the scenes to get the Sheriffs dept, the police dept. and the telecommunication companies to coordinate their services (triangulate) to provide services in the major cities like Milwaukee, Madison, Green Bay, and cities along the major Freeway/highways. It was a start that would showcase how it would work. Now I am here in FL so we will have to see what we can do here.
As for the looping and using captioning/glasses - that's terrific. Keep that motivation going. Speak up and showcase the places that work and explain about that doesn't work. If you don't say anything, they assume everything is okay... but if you show them., they will want to make right because they want your patronage. That was how it worked in Milwaukee. I got one place to put in a loop and suddenly, they were the 'highlight' of the downtown - the little darling! A paper article that stood out and the audience (us) coming to try it out. I always wrote letters thanking them for their delivering a wonderful gift for us as well as to the community at large. Because what works for us also works for many more people who don't realize that they also need hearing aids or captioning as well. It's amazing what one little step a person takes can build into a small mountain after a time.
As for the UK - they will catch on in time because most of Europe is already looped.!!!