Hello again. I did some Googling and I don’t have the muscle spasms associated with Stiff Person Syndrome. The rest of the symptoms line up, though.

In my Googling I came across a website that specifies on rare diseases (which I’m convinced is ultimately what ‘ dealing with) and, holy cow, there are literally hundreds. Unfortunately, there is not a symptom checker and unless you have a doctor that’s knowledgeable and passionate about identifying these rare diseases, I’m sure most people never get diagnosed.

That’s what I had hoped Mayo might be able to do. However, since I’ve been denied an appointment, I’m left with local doctors. The Dallas, TX area has some really top notched specialists, but I’m on my 6th rheumatologist and other than knowing I have osteoarthritis, the rest of my symptoms are still undiagnosed. I’ve also seen 5 neurologists, and several other specialists, had dozens of tests, etc. I’ve pretty much come to the conclusion, I will never know why I hurt all the time, everywhere (even when though I take strong daily Rx for pain), have vey poor balance (walk with a cane), numbness in hands, feet, legs, etc., eye pain, constant headaches, anxiety, and so forth.

Anyhow, thanks again for your comments, I wish you all the best with your health and wellness.