← Return to Undiagnosed Autoimmune with back pain, spasms, and stiffness

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@amberlynne5

Sundance, thank you for your support and response. I am very frustrated at this point. I feel my new rheumatologist is trying to get to the bottom of this but getting all my drs on the same page as been a nightmare to say the least. I was sent to a neurologist in the beginning because my primary and the first rheumatologist I seen felt more needed to be done to rule out MS however the neurologist refused to do any more testing because I had a previous normal MRI of the brain. So once again I am being sent back to him by a different dr. I still question my Lyme disease test as to wether it was a true result. Did you have a Lyme disease test if so I’m curious as to wether yours came back positive or negative?

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Replies to "Sundance, thank you for your support and response. I am very frustrated at this point. I..."

I would investigate POTS, Postural Orthostatic Tachycardia Syndrome. Usually, this causes a multitude of symptoms but is not known by most medical providers. It is disorder that causes problems with blood flow and tachycardia. If you feel lightheaded and have unrefreshing sleep after waking in the morning and it gradually improves throughout day, that is typically an indicator. The longer you stay in bed, the worse it would get. If these symptoms don't sound like a match, I would look at other central and peripheral nervous system problems.