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auntnanny (@auntnanny)

Tobramycin side effects

MAC & Bronchiectasis | Last Active: May 13, 2019 | Replies (13)

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@auntnanny

America —– I appreciate your reply so very much. I have written to Dr through Mayo portal and haven't heard back. I had asked him if maybe I could try 2 weeks on and 2 off. It is prescribed twice daily –I'm wondering how it would work for once daily???? Like you, I know I need it and want to try something to make it work. I went back on it last evening on my own but haven't had the nerve to use it again yet today. I will, though. Thank you.

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Replies to "America ----- I appreciate your reply so very much. I have written to Dr through Mayo..."

I’m sorry you’re going through a difficult time with Toby and God knows we are determined to win. Have you tried calling the nurse? I think it works faster. Also I only do once a day until I can tolerate it better. My doctor said it’s better than not doing it at all. But I always check with my doctor before I make any changes. I believe the best thing for moment is to speak to your dr or nurse especially since you are having difficulty breathing! We are all going to have a different reaction to Toby and some may be able to use it and some may not. So good luck.

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