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MRI is normal but having seizures every day

Epilepsy & Seizures | Last Active: Jun 18, 2019 | Replies (31)

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@crstyday40

@lisalucier Hi, thank you for the links, I will definitely check them out. No I havent received any kind of patient education about it from her. Im guessing I will get it on Friday when I go or atleast talk about it, I really dont know? I did look up something about it using google, not sure of the website but in other studies done patients were more likely to abuse it and I didnt like reading that at all, so that scared me!!! I dont have, that I know of, any kind of dependency issues but just knowing that its been known to cause that in other studies scares me. I feel like I need some kind of late morning or early afternoon med to help with my auras and since thats when I seem to have the seizures. So I'm torn..I want to try it for that reason but scared to from what I read about it!!! The study im going to be doing this for is from my previous neurologist, I asked my new Neuro doc what her thoughts were of me doing it and she was concerned about me doing it. I had told her about what my husband had said about me doing it and he's tired of every doc using me as their "guinea pig" and she wont answer me about there being a mid day seizure med i could take and she knows nothing about my husband. My mom takes me to all my appointments. So her agreeing with him kind of made my heart sink!!!! Not to mention my hope, Im so confused and just dont know what to do...its so aggravating!!! And disappointing to have read that her "agreeing with my husband". Im even scared he will somehow find out im talking about him on here!!!! :/

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Replies to "@lisalucier Hi, thank you for the links, I will definitely check them out. No I havent..."

@crstyday40 - Yes, I'm guessing you are completely right that you will get the patient education on the clinical trial you're going to be in with the inhaled alprazolam on Friday when you go in.

Even more so since this is a study, it's absolutely appropriate to discuss all your concerns and questions in consenting to participate, and I would imagine they would be more than happy to talk these through with you.

What was the concern of your new neurologist with your participating in this trial?