@crstyday40
Your husband should be so ashamed not just because he is perpetuating the stigma we all fight so hard to overcome but I don’t understand how he can live with himself treating his wife, best friend and soulmate so cruelly. It’s even worse knowing that he is deriving some type of sick fun by doing it. I know what you mean about it hurting. Although my experience doesn’t compare to yours but when I was 18 just after my Dad’s horrific accident I applied for a job. After mentioning I had Epilepsy the woman took my application and tore it up and threw it away and said to me “We don’t hire cripples.” It’s nothing like what your going through but it hurt me then and 38 years later it still hurts. Ignorance to that extent is inexcusable. It’s like telling me your better since your only in an induced coma for a month instead of nearly a year. I can understand ignorance in a child but adults should know better and if they don’t they should keep their mouth s shut. I was recuperating from an apparent entertaining seizure at the mall with the usual crowd looking on and a little kid walked up to me looking scared when his mother (I assume) yanked him back saying stay away from him. My Mom heard the Mom and friend saying something about it being catching. I didn’t think the ignorance was that bad but it happened 30 years ago. From my seizure experiences no seizures are pleasant.
Epilepsy affects different people in different ways obviously, however when you’re having seizures especially uncontrolled seizures it can affect the way you feel about yourself or about your family about being a burden to others. When I was a teenager I had a nervous breakdown due to the severity and all the issues I thought it was causing.
Focal Impaired Seizures are so dangerous. I had one at the Grand Canyon and was stopped not far from the edge. I had other close calls too.

Here’s a 24/7 support number if you want to talk or get advice etc from the Epilepsy Foundation.

Here is a study but I’m not sure where your located so it may not be convenient for you and since you plan on enrolling in another study I don’t know if you can do two at once.

I can’t find the appropriate words to convey to you how sorry I am for what your being subjected to. He’s not a child and should know better.
I know he’s your husband and you obviously love him and I don’t mean to step on toes but wrong is wrong.

Blessings,
Jake