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MRI is normal but having seizures every day

Epilepsy & Seizures | Last Active: Jun 18, 2019 | Replies (31)

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@crstyday40

@lisalucier Thank you for thinking about me, very sweet of you to say, Thank you!! Yes ma'am I am still continuing to have them everyday!! I did get a call from my first Neuro doc and theybwanted to know if Inwould be interested in doing a clinical trial for Alprazolam Inhaler, a rescue drug she called it. So I told her her absolutely! Sign me up, am willing to do and try anything at this point. So I go this Friday to start it. Thing is, I told my husband about it, called him, and he was so mad and cussing me and doesnt want me to do it. Said "the seizures im having now are teeny tiny and atleast im not flopping on the floor like a fish" I started crying my eyes out, it hurt, still hurts....wanted to hurt myself and had thoughts of just ending my life or cutting myself, something! I didnt but the thoughts were definitely there!!! He thinks these doctors are just treating me as their "guinea pig" but im like what if it helps? Its worth a try I told him but he just kept saying F*** NO! Im doing it anyway, my mom is taking me. Has anybody ever heard of or tried the alprazolam inhaler? If so would love to hear your thoughts about it, thank you all so much for me being anle to have somewhere tongo for support!! Thank you!

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Replies to "@lisalucier Thank you for thinking about me, very sweet of you to say, Thank you!! Yes..."

Hi, @crstyday40 - here is some information on alprazolam, but do note this is oral, not inhaled form https://www.mayoclinic.org/drugs-supplements/alprazolam-oral-route/description/drg-20061040.

Also, given what you've shared you are going through with your epilepsy and your husband, I thought you might be interested in checking out this Connect discussion sometime, started recently https://connect.mayoclinic.org/discussion/handling-ups-and-downs-in-marriage-and-other-relationships. It's about facing ups and downs in marital or other relationships in the face of a medical problem affecting one of the people involved.

I'm not personally familiar with this application for this medication. Did the neurologist provide you with some patient education about what’s known so far about this treatment for patients with epilepsy, based on previous studies?

@crstyday40 - how did things go Friday with starting the clinical trial with the alprazolam inhaler?