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MRI is normal but having seizures every day

Epilepsy & Seizures | Last Active: Jun 18, 2019 | Replies (31)

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@techi

@crstyday40 Hi Crystal l was reading your post. My heart goes out to you but don't give up. I had a TBI in 1997. After being in the hospital l followed up the neurologist that first admitted me and l had to change him. Then my second one was great and he diagnosed as having seizures in 1998. I was taking seizure medicine no problem. Then he changed over to treating MS patients. So l lost my favorite neurologist. In 2014 l got real sick and was admitted to the hospital and now l had a new neurologist and he said l didn't have seizures l was stressed, anxiety and l was faking falling out. No it was my liver. I had AE by some HE by my liver doctor which is true l have 5 shunts to prove that. Now l going to a new neurologist after sending a letter to my private care doctor after he retired that l went to the Mayo clinic. Because l have a problem with one shunt and my ammonia levels go up. So the new neurologist l like him and now on Monday l am being admitted for a week so they can see if l am having seizures and what kind. But l been reading so much medical material, I have a neice who teaches at Duke, and another doctor in the family. And your test can come back normal but you can still have seizures. And sometimes you have to have test run longer. My new neurologist said doing a eeg for 1hr can't always rule out a seizure. And so sometimes you have to be admitted. So dont give up. It's hard but just ask God to help you find either the right doctors or the one you have just ask if he will test you longer. And just do something you enjoy. I telling lots of people who are waiting. I like working with my hands so l have been able to do some gardening. When l am doing alot of things for others l get tired but l enjoy that, so l do and rest. I praying for you. And l do alot of journaling of my day so when l see the doctor l can show him or her my day.

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Replies to "@crstyday40 Hi Crystal l was reading your post. My heart goes out to you but don't..."

@techi Thank you so much, my heart goes out to you as well!! Sounds like you're going through all kinds of things! Im so sorry!! I stay at home by myself, and I will pray and talk to God and I pray at night to please help the doctors find the right meds for me etc....Im willing to do and try anything suggested, my husband is not being supportive at all! He thinks these seizures im having now are nothing compared to the ones i was having prior to my surgery and he's right but at the same time, these im having now still affect me and how I feel and he doesnt even a little bit understand, he cant because he doesnt go through it or has ever dealt with it before. He's making me sad, very sad!!! He's got a bad temper and easily gets mad about any and everything, so that doesnt help my situation at all!!! Atleast I get the house all to myself til 5:30 p.m!!!!!!!!! But anyways, thank you for responding and your kind words!!! I will be thinking of you as well and hoping nothing but the best for you!! Thank you again and good luck with it all!!!