Hello Crystal,
If I remember correctly which would be a long shot, you have Focal Seizures. Are the Focal Aware or Focal Impaired (Simple or Complex Partials)
Have you ever been admitted to an Epilepsy Center, level 4 and been followed by an Epileptologist for a complete work up? I assume with your history and Refractory Seizures you probably have been.
Have you sought out drug or device trials?
Have you reconsidered the the RMS? I know you weren’t interested in it awhile back. If not the DBS might not interest you either.
One important thing is, do you suffer from anxiety or depression or stress? Definite seizure triggers. What is the issue with the hippocampus? Have you tried every drug and drug cocktail and all drug strengths? Here are a few things to consider. Although they have not been proven to be effective but who knows what works on who.

Acupuncture
Chiropractic Care
Biofeedback
Hyperbaric Oxygen Treatment (HBOT)
Supplements, B vitamins etc remember AED’s deplete certain things like Vit D, folate, etc.
Relaxation techniques
Enzyme Therapy

How long have you been with this Neuro, might be time for some fresh blood.
Have you checked into genetic testing for both Epilepsy and Pharmaceutical testing. Possible there is a genetic mutation causing the seizures.
Also I’d ask your Neuro if your risk of SUPEP (Sudden Unexpected Death In Epilepsy) is increased due to your seizures being Intractable. It might alert the doc that you know the severity of the condition and something needs to be done. Personally I believe if your docs haven’t referred you to an E Center or somewhere or for more specialized testing they are remiss in their responsibilities.
Good luck Crystal,
Jake

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