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MRI is normal but having seizures every day

Epilepsy & Seizures | Last Active: Jun 18, 2019 | Replies (31)

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@jakedduck1

Hello Crystal,
If I remember correctly which would be a long shot, you have Focal Seizures. Are the Focal Aware or Focal Impaired (Simple or Complex Partials)
Have you ever been admitted to an Epilepsy Center, level 4 and been followed by an Epileptologist for a complete work up? I assume with your history and Refractory Seizures you probably have been.
Have you sought out drug or device trials?
Have you reconsidered the the RMS? I know you weren’t interested in it awhile back. If not the DBS might not interest you either.
One important thing is, do you suffer from anxiety or depression or stress? Definite seizure triggers. What is the issue with the hippocampus? Have you tried every drug and drug cocktail and all drug strengths? Here are a few things to consider. Although they have not been proven to be effective but who knows what works on who.

Acupuncture
Chiropractic Care
Biofeedback
Hyperbaric Oxygen Treatment (HBOT)
Supplements, B vitamins etc remember AED’s deplete certain things like Vit D, folate, etc.
Relaxation techniques
Enzyme Therapy

How long have you been with this Neuro, might be time for some fresh blood.
Have you checked into genetic testing for both Epilepsy and Pharmaceutical testing. Possible there is a genetic mutation causing the seizures.
Also I’d ask your Neuro if your risk of SUPEP (Sudden Unexpected Death In Epilepsy) is increased due to your seizures being Intractable. It might alert the doc that you know the severity of the condition and something needs to be done. Personally I believe if your docs haven’t referred you to an E Center or somewhere or for more specialized testing they are remiss in their responsibilities.
Good luck Crystal,
Jake

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Replies to "Hello Crystal, If I remember correctly which would be a long shot, you have Focal Seizures...."

@jakedduck1 Hi! Yes i was seen by epitilolgist at Shands in Gainesville. They were the ones that found the abnormalities and where they were, everything! Its been awhile but I did a clinical trial for Topamax and im having complex partials. I feel like they are starting to get a little worse each time. Im mot always losing bladder control everytime but started saying what I use to say (15 yrs ago) I repeat "oh sh*t and im ok" I was just saying "im ok" over and over. I have tried all kinds of different drug cocktails and right now im at the highest dose of all of them now, ive asked her to increase the dose but she tells me she cant that im at the highest dose. And as for changing neuros, I have medicaid so I dont know that I even can. I dont even know of any other ones near me or in my area. My mom takes me to all my doc appt, amd she lives an hour away from me, then its another 30 min to getbto my neuro. I have considered the RNS but I think the percentage rate of it helping is low and I dont think my husband wants me to go through another brain surgery. I take buspar for my anxiety and Amitryptiline for sleep and depression. I think I answered everything..oh yes stress and not sleeping are huge triggers, also I love to crochet and so that helps relax me and listening to music helps also. But sometimes my seizures just happen for no reason at all, while im crocheting not feeling stressed or anything. Oh yeah also I have been having staring seizures, which is new for me. Okay, I think I answered everything that time. I apologize if i didnt. Thank you for all your info and input I really do appreciate everything!