1. < Digestive Health

Recommended fiber amount for diverticulosis and tortuous colon

Posted by virginia44 @virginia44, May 5, 2019

What are the recommended amounts of daily intake of both soluble and insoluble fiber for patients with tortuous colon? I realize this has to be somewhat individual, but wonder what a good starting point would be for both types.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 12, 2019
In reply to @thull "I am actually feeling great! Slowly gaining my weight back and eating normally. I still have..." + (show)
@thull

I am actually feeling great! Slowly gaining my weight back and eating normally. I still have certain foods that can bother me, but that is typical with IBS, which I have had for years. You can google Deloyers procedure and it gives a good description, and from what I have read, positive long term outcomes. There seems to be a faster turn around time as I had so much large intestine removed, but I plan my day and meals where I have bathroom access should the need arise. I think about where I was a year ago with all this...what a difference! It is nice to not be afraid to eat anymore!

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@thull Was your surgery done at Mayo? If so, who was your doctor?

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1 reply
thull | @thull | May 12, 2019
In reply to @hopeful33250 "@thull Was your surgery done at Mayo? If so, who was your doctor?" + (show)
@hopeful33250

@thull Was your surgery done at Mayo? If so, who was your doctor?

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Yes, Mayo in Phoenix. Dr Rhee was the resident surgeon, but Dr Mishra is the ColoRectal surgeon who oversaw everything and was in the operating room. Very thankful to have a specialist .

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1 reply
virginia44 | @virginia44 | May 12, 2019
In reply to @thull "Yes, Mayo in Phoenix. Dr Rhee was the resident surgeon, but Dr Mishra is the ColoRectal..." + (show)
@thull

Yes, Mayo in Phoenix. Dr Rhee was the resident surgeon, but Dr Mishra is the ColoRectal surgeon who oversaw everything and was in the operating room. Very thankful to have a specialist .

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Thank you for the info. In need to think all of this over in the near future. I don't live anywhere near either Mayo Clinic, but it is reasonable to have a top level specialist for a surgery like this.

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1 reply
JK | @contentandwell | May 12, 2019

As @hopeful33250 said, there is nothing on the Mayo site about this but there is on the NCBI site -- https://www.ncbi.nlm.nih.gov/pubmed/22469806. It's pretty complex sounding for a layperson though.
NCBI is National Center for Biotechnology Information, and part of the National Institue of Health.

@thull Is tortuous colon related to IBS? I ask because I am trying to figure out now if I have IBS or a simple lactose intolerance. I seem to have days when I have scrupulously avoided dairy and still have a problem. It's not every day, but this sure is a nuisance.
JK

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 12, 2019
In reply to @virginia44 "Thank you for the info. In need to think all of this over in the near..." + (show)
@virginia44

Thank you for the info. In need to think all of this over in the near future. I don't live anywhere near either Mayo Clinic, but it is reasonable to have a top level specialist for a surgery like this.

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@virginia44 There are 3 Mayo facilities, Minnesota, Arizona, and Florida. Here is information on requesting an appointment, https://www.mayoclinic.org/departments-centers/international/appointments.

You can certainly check in your local community, especially if you have a university medical school nearby. They may have some specialists there as well that you could consult with.

Will you keep in touch and post an update when you have more information?

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virginia44 | @virginia44 | May 12, 2019

Yes, I will do that. They recently started me on a low dose of the anti-anxiety medication amitriptyline to try to calm down the enteric nervous system. It has been helpful, although not the complete solution. I will see how well it works in combination with dietary restrictions. But I will also be investigating the surgical options. I want to get back to living my life and being able to travel and participate,

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thull | @thull | May 12, 2019
In reply to @contentandwell "As @hopeful33250 said, there is nothing on the Mayo site about this but there is on..." + (show)
@contentandwell

As @hopeful33250 said, there is nothing on the Mayo site about this but there is on the NCBI site -- https://www.ncbi.nlm.nih.gov/pubmed/22469806. It's pretty complex sounding for a layperson though.
NCBI is National Center for Biotechnology Information, and part of the National Institue of Health.

@thull Is tortuous colon related to IBS? I ask because I am trying to figure out now if I have IBS or a simple lactose intolerance. I seem to have days when I have scrupulously avoided dairy and still have a problem. It's not every day, but this sure is a nuisance.
JK

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I don't think it is related, as I have had IBS for years, but no tortuous colon,just the diverticulitis.

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