Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I also developed neuropathy... slowly.. starting with "sock under toes" feeling. Now in feet and lower legs... but like John's.. some numbness but no pain.
Had been on statins.. high dose for approx. 20 years. No other possible causes could be discovered so with Dr's agreement I dropped statin almost a year ago. No improvement.. but not worse. Functional medicine Dr. recommended taking bergemot, which I've been doing. Seems they think this has a mild effect in lowering LDL.

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Yes, that is another proof that statins are not the right thing for a lot of people. The Dr. had put me on all of the statins (to find the right one) and all they did was make ache and did not do a lot for my cholesterol numbers anyway. I decided ENOUGH ALREADY and stopped on my own. I also learned that Big Pharma gives kick backs to Dr.'s who prescribe them. https://www.npr.org/series/130598927/dollars-for-docs-how-pharma-money-influences-physician-prescriptions. One of my Doctors was a leader in pay offs. (needless to say I no longer use him). But, I digress, it did not help to stop the statins because if that was the cause it was too late to stop the neurapathy pain.

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I have only been on Crestor for a few days, but when recommending that I take it my doctor told me about 3 potential serious side effects, one of which was painful muscles. I was instructed that if any of those 3 side effects occurred, to stop taking the medication immediately. He did not mention neuropathy as a potential side-effect, and he is aware that I have SFN.

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Everyone should read this! Try kratom! It’s an herb! Very good for everything included neuropathy! Bali red kratom!’ Just trying to help people!

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@wilcy kratom is also a supplement which means it's not controlled so buyer beware on the quality and where you buy it. It has also not had any clinical studies done that I am aware of, although some members like yourself have found it helpful. I would just make sure you do read as much information as you can about it and go in with your eyes wide open so to speak.

What is kratom? The popular herbal supplement has caught flak from the FDA. Some advocates credit the supplement with getting them off opioids.
Oct. 16, 2019 -- https://www.nbcnews.com/health/health-news/what-kratom-popular-herbal-supplement-has-caught-flak-fda-n1066526

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Thank you all for your thoughts and sharing personal experiences

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The medical answer to all high cholesterol seems to be to take statins. I took lipitor for a long while and my doc even put me on the highest dosage. i complained of muscle pain, lost energy, needing to sleep for an hour every morning and another in the afternoon, constant tiredness, water retention, etc. in short, my life was gonig down the toilet but the cardiologist insisted that the statins were great. I phased them out over 30 days, lost 45lbs over 6 months (so far), and have had work done to get my lymphatic system working again as it was shut down by the lipitor poison. i am now full of energy and enjoy life!!! my cholesterol is dropping slowly but this is not the issue - i understand from an honest doctor that inflammation is like a fire and cholesterol is the fire brigade. why would doctors reduce the fire brigade with statins and not address the fire? I need to get my triglycerides down as this is fat linked and not good. how can i achieve this and not have to take pill-poison?

to put this further into perspective, my cardiologist was talking of putting me on diabetes medicine also as my blood sugar was high @7.8. I refused and my sugar level has dropped to @5.9 and going down.

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

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BOTH! It is a well known risk (not potential) for PN. Just do a quick Google search. I believed this pill pusher for 8 years and the last two every time I mentioned numbness, tingling, cold feeling in my hands, mostly my feet, she either changed the subject, said "it must be your nerves" or ignored the comment completely. Turns out I never had high cholesterol nor diabetes. Brenda Peart is the head Cardiologist for the Carondelet Medical Group in Tucson, Az. and after contacting 27 lawyers, in and out of state, no one would go up against her. She ruined my life and who knows how many others and will never be brought to justice. My confidence in the medical profession is forever changed. I know one bad apple doesn't make the whole tree bad but in a few years I may wind up in a wheel chair and I have to wake up to that prospect every morning. Believe what you want about inferred treatments, exercise, Gabapentin, etc. THERE IS NO CURE FOR PERIPHERAL NEUROPATHY!

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

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After several unsuccessful Statin prescriptions, my PCP suggested Red Yeast Rice 600mg capsules which I purchased at Sam's Club.

My LDL cholesterol was reduced from 110 to 90 after 30 days and I continue taking it until I achieve a 70 LDL reading.
Having 2 stents in the LCA is reason for the lower goal.

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@kazz30

After several unsuccessful Statin prescriptions, my PCP suggested Red Yeast Rice 600mg capsules which I purchased at Sam's Club.

My LDL cholesterol was reduced from 110 to 90 after 30 days and I continue taking it until I achieve a 70 LDL reading.
Having 2 stents in the LCA is reason for the lower goal.

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Hi, @kazz30 - when you say your statin prescriptions were unsuccessful, do you mean at lowering your LDL? Have you experienced any side effects with the red yeast rice capsules?

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